Advanced Care Planning Resources
Advance Care Planning
Making Future Health Care Decisions
Assistlist.ca is a non-profit organization run out of the lower mainland and administered completely by volunteers. Their mission is to support seniors and those with disabilities to find affordable pre-owned home health equipment as well as helping others who no longer need the items they own. Buying new equipment such as motorized scooters, electric beds, and stairlifts are awfully expensive and out of reach for some people. Alternatively, there may be people who have these items that they no longer need. AssistList is a website where buyers, sellers, and donators come together specifically to exchange used health equipment. This service is now available in Northwest BC.
The Provincial End-of-Life Care Action Plan for BC
Priorities and actions for health system and service redesign as outlined by the BC Ministry of Health, 2013.
BC Palliative Care Benefits Program
The BC Palliative Care Benefits Program supports BC residents of any age who have reached the end stage of a life-threatening disease or illness and who wish to receive palliative care at home.
BC Bereavement Helpline
Helping the people of BC to cope with grief. Assistance is available for the bereaved and their caregivers.
Accessing End of Life Care in BC
End-of-life care is supportive and compassionate care that improves the quality of life for dying people and their families. Care at the end of life addresses physical, psychological, and spiritual needs of the dying person and focuses on comfort and symptom management, respect for decisions, and support for the dying person and their family.
Family Caregivers’ Network Society There are over 93,000 family caregivers in the Greater Victoria area who provide care for an adult family member or friend who is chronically ill, frail, elderly or has a disability.
Home and Community Care Services
If you are interested in receiving home and community care services or know of someone who might be in need of these services you can contact the home and community care office in your health authority to request an assessment for services.
Canadian Hospice Palliative Care Association (CHPCA) Provides leadership and advocacy for quality hospice palliative care for all Canadians and increased awareness of end of life care issues in Canada.
Canadian Virtual Hospice Information and support on palliative and end-of-life care, loss and grief. Our team of experts can answer your questions about life-threatening illness and loss.
Canadian Virtual Hospice – New online Tools
Compassionate Care Benefits Benefits paid to eligible individuals who must be away from work temporarily to provide care or support to a family member who is seriously ill and at risk of dying.
Quality End of Life Care Coalition of Canada The Quality End-of-life Care Coalition of Canada is a group of over 36 national organizations concerned about quality end-of-life care for all Canadians.
Living Lessons A national initiative providing resources for patients, caregivers and healthcare professionals involved with end-of-life care in Canada.
Speak Up The Speak Up campaign was developed to raise awareness of the importance of advance care planning, as well as the issues related to an aging population, a strained health care system and end of life care. Join the Speak Up Team and help promote national advance care planning day.
The Way Forward Imagine a new reality, where hospice palliative care is available to Canadians when and where they need it―where the goal of care is to live well until death. Now, imagine a plan to get there. That’s The Way Forward.
Palliative Care Network Community Palliative Care Network’s mission is to provide a free platform to empower Palliative Care professionals to teach, interact, and exchange ideas with fellow colleagues globally to promote collaboration and an exchange of knowledge. Includes Barry Ashpole’s weekly Media Watch.
Five Wishes lets your family and doctors know:
1. Who you want to make health care decisions for you when you can’t make them.
2. The kind of medical treatment you want or don’t want.
3. How comfortable you want to be.
4. How you want people to treat you.
5. What you want your loved ones to know.
The Conversation Project
Have you had the conversation?
Asbestos-Related Lung Cancer
Asbestos-related lung cancer and pleural mesothelioma share similar symptoms and diagnostic procedures. However, lung cancer has different physical characteristics and treatment procedures. Asbestos lung cancer develops inside the lung, whereas pleural mesothelioma develops in the lining. For more information check out https://www.asbestos.com/cancer/lung-cancer
Consumer Health Information that is up to date, reliable and free of commercial influence. Interior Health’s team of Medical Librarians has compiled a list of trusted online medical reference resources to help you with your medical questions. https://www.interiorhealth.ca/YourHealth/HealthReferenceInfo/Pages/PatientLibrary.aspx
Understanding Ambiguous Loss
Dr Pauline Boss, Professor Emeritus of the University of Wisconsin, Family Therapist, and author of several scholarly publications, one called, The Myth of Closure, talks about the unique and protracted grief experienced when a loved one simply disappears from our lives. This could be a soldier missing in action, a parent vanishing into a fog of Alzheimer’s disease, or a kidnapped or run-away child who never comes home.
This grief cannot be adequately equated to the witnessed loss by death of a loved one, and it is effectively different from ‘Complicated Grief’.
Dr. Boss is the acknowledged expounder of a unique diagnosis recently added to the DSM.
Medical Assistance in Dying Information https://bridge4you.ca/
Navigating Medical Assistance in Dying
Updated version of the ‘Guide to Financial Assistance for Caregivers’ document from the FCBC Caregiver Support Line (CSL) team: https://www.familycaregiversbc.ca/wp-content/uploads/2021/02/Guide-to-Financial-Assistance-January-2021.pdf
End-of-Life University - Podcast (eoluniversity.com) Each week End-of-Life University presents topics such as palliative care, spiritual needs, grief, hope and resiliency. On the 9th of each month they have a special vigil which tends to be shorter (about 13 min.) than the other episodes which range from 30 min. to an hour and a half long.
The Heart of Hospice (libsyn.com) The Heart of Hospice. Episode 75, Dec. 15/2020. "Finding Yourself Care Energy with Dawn Renee of Traveling Caregivers" (44 min.) Dawn Renee speaks about the self-care journey for the caregiver.
How Can I Be a Compassionate Caregiver?
BY STAN GOLDBERG
Caring for someone with a chronic or terminal illness can bring out the best in us, says Stan Goldberg, but it can also reveal our sharp and judgmental qualities. For Buddhists caring for non-Buddhists, the challenge is even greater.
BY AJAHN VIRADHAMMO
After caring for his ailing mother for nine years, Ajahn Viradhammo reflects on self-sacrifice and the importance of cultivating a strong and expansive heart.
On September 30, James Cowan, Helen Long, and Puneet Luthra from DWDC talked viewers through the major changes proposed in Bill C-7, the current status of legislation in parliament, the long-awaited parliamentary review of MAID, and what comes next. Attendees walked away from this webinar with a thorough understanding of MAID in Canada, and actionable steps they could take to advocate for timely changes.
Click here for specific links from the Healthy Aging Core website.
Copyright © 2021 Terrace Hospice Society Caregiver Program - All Rights Reserved.
Our Family and Friends Caregivers Support of the Northwest is funded by the Government of BC, managed by United Way, and supported by Family Caregivers of BC.
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